THE DOCTORS DON'T KNOW ANYTHING

OK NOW I AM GOING TO TELL YOU ABOUT WHAT HAS BEEN HAPPENING FOR THE PAST COUPLE OF MONTHS. I HAVE BEEN CALLING AND CALLING JOSHUA'S GEENTIC DOCTORS. I HAVE SPOKEN TO HIS ASST. I HAVE TOLD HER THAT I HAVE BEEN LOOKING IN BOOKS AND IN TH INTERENET ABOUT MY SONS CHARACTERISTICS AND THINGS THAT HE HAS BEEN DOING. I THOUGHT IT COULD BE THE PRADER WILLIE SUNDROME AND SHE TELLS ME NO WE THOUGHT THAT TOO BUT IT CAME OUT FINE. SO I ASLO TOLD HER THAT CAN'T THEY DO A FISHING TEST, MAYBE THEY CAN FIND SOMETHING THAT HE MAY BE MISSING A CHROMOSOME. SHE TELLS ME WELL THE CGH TESTING THAT THEY DID TELLS THEM IF HE IS OR NOT MISSING ANYTHING OR IF HE HAS ANY SYNDROMES. WHAT GOT ME MAD WAS THAT SHE TELLS ME THAT I AM THE ONLY PAENT THAT CALLS ABOUT THERE CHILD. WELL LET ME SEE NOW, IF YOU HAVE A CHILD THAT HAS PROBLEMS AND THE DOCTORS WON'T GIVE YOU ANY ANSWERS YOU WILL KEEP ON CALLING AND ASKING MORE QUESTIONS RIGHT?

SO WHAT I DID WAS I TOOK HIM TO ANOTHER GENETICS PLACE, CALLED ALL CHILDRENS HOSPITAL. HE GOES TO THE OUTPATIENT CARE. IT'S A CLINIC. HE WENT THERE FOR THE RENAL DOCTOR AND TOLD ME THAT I HAVE TO WATCH IT AND HE GAVE ME MORE ANSWERS ON HIS KIDNEY. HE CAN PEE NOT ENOUGH LIKE HE IS SUPPOSED TO. BUT THE GNETICS THAT JOSHUA IS SEEING ASKED ALL THE QUESTIONS AND I GAVE HIMA LL THE ANSWERS. THEY DECIDED TO TAKE SOME BLOOD FROM HIM FOR METABOLIC DISORDERS. IF EVERYTHING IS FINE THEY WANT TO TAKE A MUSCLE BIOSPY TO SEE WHY HE IS LOW TONE. AS LONG AS THEY DON'T GIVE UP AND TAKE TESTS ON HIM AND I'M GETTING MORE ANSWERS THEN I AM FINE.

MY SON HAS PROGRESSED SINCE LAST YEAR. HE STARTED WALKING IN HIS WALKER BACKWARDS. HE IS GETTING MORE STRENGTH ON HIS LEGS. HE IS GETTING HEAD STRENGH TOO. HE CAN HOLD HIS HEAD UP MORE THEN EVER. HE IS GRABBING HIS BLANKETS, HE GRABS HIS PACIFIER AND HOLDS IT. I'M TRYING TO MAKE HIM HOLD HIS BABY COOKIE INSTEAD OF PUTTING HIS HANDS IN HIS MOUTH. THATS THE ONLY PROBLEM THAT WE HAVE IS THATBOTH OF HIS HANDS GO INTO HIS MOUTH. IT LIKE SOOTHS HIM. BUT IF HE WOULD STOP THEN HE CAN DO MORE THINGS.

WELL THANK YOU SO MUCH FR READINGMY SONS STORIES. IF YOU HAVE ANY QUESTIONS PLEASE FEEL FREE TO ASK ME ANYTHING.