THE DOCTORS DON'T KNOW ANYTHING

OK NOW I AM GOING TO TELL YOU ABOUT WHAT HAS BEEN HAPPENING FOR THE PAST COUPLE OF MONTHS. I HAVE BEEN CALLING AND CALLING JOSHUA'S GEENTIC DOCTORS. I HAVE SPOKEN TO HIS ASST. I HAVE TOLD HER THAT I HAVE BEEN LOOKING IN BOOKS AND IN TH INTERENET ABOUT MY SONS CHARACTERISTICS AND THINGS THAT HE HAS BEEN DOING. I THOUGHT IT COULD BE THE PRADER WILLIE SUNDROME AND SHE TELLS ME NO WE THOUGHT THAT TOO BUT IT CAME OUT FINE. SO I ASLO TOLD HER THAT CAN'T THEY DO A FISHING TEST, MAYBE THEY CAN FIND SOMETHING THAT HE MAY BE MISSING A CHROMOSOME. SHE TELLS ME WELL THE CGH TESTING THAT THEY DID TELLS THEM IF HE IS OR NOT MISSING ANYTHING OR IF HE HAS ANY SYNDROMES. WHAT GOT ME MAD WAS THAT SHE TELLS ME THAT I AM THE ONLY PAENT THAT CALLS ABOUT THERE CHILD. WELL LET ME SEE NOW, IF YOU HAVE A CHILD THAT HAS PROBLEMS AND THE DOCTORS WON'T GIVE YOU ANY ANSWERS YOU WILL KEEP ON CALLING AND ASKING MORE QUESTIONS RIGHT?

SO WHAT I DID WAS I TOOK HIM TO ANOTHER GENETICS PLACE, CALLED ALL CHILDRENS HOSPITAL. HE GOES TO THE OUTPATIENT CARE. IT'S A CLINIC. HE WENT THERE FOR THE RENAL DOCTOR AND TOLD ME THAT I HAVE TO WATCH IT AND HE GAVE ME MORE ANSWERS ON HIS KIDNEY. HE CAN PEE NOT ENOUGH LIKE HE IS SUPPOSED TO. BUT THE GNETICS THAT JOSHUA IS SEEING ASKED ALL THE QUESTIONS AND I GAVE HIMA LL THE ANSWERS. THEY DECIDED TO TAKE SOME BLOOD FROM HIM FOR METABOLIC DISORDERS. IF EVERYTHING IS FINE THEY WANT TO TAKE A MUSCLE BIOSPY TO SEE WHY HE IS LOW TONE. AS LONG AS THEY DON'T GIVE UP AND TAKE TESTS ON HIM AND I'M GETTING MORE ANSWERS THEN I AM FINE.

MY SON HAS PROGRESSED SINCE LAST YEAR. HE STARTED WALKING IN HIS WALKER BACKWARDS. HE IS GETTING MORE STRENGTH ON HIS LEGS. HE IS GETTING HEAD STRENGH TOO. HE CAN HOLD HIS HEAD UP MORE THEN EVER. HE IS GRABBING HIS BLANKETS, HE GRABS HIS PACIFIER AND HOLDS IT. I'M TRYING TO MAKE HIM HOLD HIS BABY COOKIE INSTEAD OF PUTTING HIS HANDS IN HIS MOUTH. THATS THE ONLY PROBLEM THAT WE HAVE IS THATBOTH OF HIS HANDS GO INTO HIS MOUTH. IT LIKE SOOTHS HIM. BUT IF HE WOULD STOP THEN HE CAN DO MORE THINGS.

WELL THANK YOU SO MUCH FR READINGMY SONS STORIES. IF YOU HAVE ANY QUESTIONS PLEASE FEEL FREE TO ASK ME ANYTHING.

This is what I found out 07/18/2010

Well since my last post, I found out some other things. My sons seizures has died down. I haven't seen anything ina bout 4 months. Now that is too good. Now One day I told myself not to give up and keep on trying to find out about Joshua. So I looked online on genetics disorders and birth defects. There was one article that tells about my pregnancy. I had too much amnitioc fluid and he wasn't moving alot in my belly. And things happen after a couple of months that appears not after birth. It happens a while after birth. He has a diamond shaped eyes, He has a high narrow head, and he he is developmetnal delayed etc. It all comes out to be the prader willi syndrome. Even though I don't want to admit it that he does have something. Now, the dr's from genetics and his neurologist told me that they took a chromosome testing of the syndromes on what i told you and they said it came out negative. They thought the same thing. so if they took that testing of the prader willi syndrome then what can it be? noone still doesn't know. To me it is good in a way, because He is my son and you know when it comes out that it is your son you don't want to label him or her as a syndrome right?

Also I am going a little crazy here becasue I am still not working and I hear about work from home moms and I can't find any good sites on it. How do I know that it is legitate? If anyone does read this please contact me? Thank you.

Cheryl 'Pepsii' Riley - Thanks For My Child

Whitney Houston - Count On Me Featuring CeCe Winans

MOTHERHOOD

FOR A MOTHER OF THREE BOYS AND ONE WITH SPECIAL NEEDS IT'S PRETTY HARD. MY OTHER TWO OLDEST BOYS ARE 11 AND THE OTHER IS GOING ON 7 SOON. THEY CAN ACTUALLY MANAGE DOING THINGS AROUND THE HOUSE. BUT MOST OF THE TIME THEY DON'T WANT TO DO ANYTHING, BUT TO PLAY PLAYSTATION AND SOMETIMES THEY DON'T WANT TO EAT. BUT JUNK FOOD. WITH MY LITTLE BABY BOY JOSHUA, I HAVE TO FEED HIM THROUGH HIS BUTTON. HE IS DOING A LOT BETTER SINCE HE HAD SURGERY. HE IS GETTING A LOT BETTER. HE IS GAINING MORE WEIGHT. HE IS NOW AT 20 IBS AND A 1/2 OZ. HE ROLLS OVER, SOMETHING HE COULDN'T DO BEFORE. THAT MADE ME VERY HAPPY. HIS NEUROLOGISTS TOLD ME IF I DIDN'T SAY THIS BEFORE, THAT HE MAY NOT DO ANYTHING EXCEPT FOR TO SIT. BUT SINCE I TOOK HIM TO THAT HEALER IN ORLANDO THAT HE, MY SON PROVED HIM SO WRONG. HIS DRAW DROPPED WHEN HE SAW HIM. MY SON, JOSHUA ROLLED OVER FROM FRONT TO BACK AND FROM THE BACK TO THE FRONT. HE PICKED HIM UP AND HE TOLD ME 'IS THERE ANYTHING THAT I CAN DO FOR YOU" EXACT WORDS. I TOLD HIM NO. I'M GOOD. HE WAS SO SHOCKED. BUT HE TOOK AN UPDATED EEG TO SEE ABOUT THE SEIZURES AND HE IS STILL THE SAME. FROM LAST IT WAS A TINY BIT BETTER. BUT HE STILL HAS THE SPIKES.

JOSHUA WENT ABOUT A MONTH AGO TO FIT FOR HIS WEELCHAIR/STROLLER CHAIR. IT LOOKS REAL CUTE. IT'S FOR HIM TO SIT IN IT STRAIGHT AND TO PUT HIS HEAD STRAIGHT UP WITH OUT HIM SLOUCHING. I'M ALWAYS CARRYING HIM AND HE IS GETTING VERY HEAVY. BUT HE WILL DO GOOD IN IT. THEN HE IS GETTING THE BATH TUB BECAUSE HE CAN'T FIT IN THE BABAY ONE. OF COURSE NOT HE IS 22 MONTHS OLD. HE IS GETTING TO HEAVY AND TOO BIG. AND HE IS ALSO GETTING A STANDER. SO HE CAN STAND UP ON IT STRAIGHT. HE IS ALWAYS LAYING DOWN. BUT HE WILL DO BETTER. NOW IT IS THE WAITING GAME WITH HIM.

BUT LIKE I WAS SAYING BEING A MOTHER IS HARD WITH TAKING CARE OF A SPECIAL NEEDS BOY. THEY NEED A LOT OF ATTENTION. A LOT OF LOVE. PLUS I WOULD HAVE TO CLEAN THE HOUSE AND COOK AND HELP MY OTHER TWO BOYS WITH THERE HOMEWORK. YES THE DAD IS HERE TOO BUT HE HELPS TOO. BUT I DON'T REALLY HAVE THAT MANY FRIENDS OUT HERE. I WAS LOOKING FOR SOME MOTHERS GROUP OUT HERE THAT I CAN INTERACT WITH OTHER MOMS BUT THERE ISN'T ANY OUTSIDE OF THE INTERNET. BUT THERE ARE SOM WEBSITES THAT ARE FOR MOTHERS AND PARENTS. IF ANYONE DOES READ THIS PLEASE CONTACT ME THROUGH MY EMAIL IF YOU DON'T SEE IT ON MY BLOGGER HERE IS MY EMAIL
ISAIAHGABBY1@YAHOO.COM.